It's been a while

Well (Eric here) I'm sorry it has been a while since our last post.. I wanted Heather's words to stay at the top for a while..

Any way.. I'm writing this about 50% choked up.. Nothing to do with Kaitlyn's progress, but just a little thing she said before she went to bed 2nite.. As Heather was walking in the room with her, she said.. "Daddy, I a little sick...." I said "what honey?" she said again... " I a little sick".. I went over to her (up in mommy's arms) and rubbed her back. I said "What is the matter babe, why are you sick.." Her response nearly burst my heart.. "I have ookemeia" I looked to Heather and back to Kaitlyn and said "what hon?" "I have ookemeia Daddy"

WOW.. as my eyes tear up right now (it's becoming more and more rare) I don't even know what to say. Last night we looked at pics of the girls before this whole ordeal. It was almost like watching some other family on screen.. Kind of like they were characters that we knew, and knew well.. but were much to distant from our curent lives to be us.


My little baby girl is growing up in the face of adversity. She is maturing well beyond her age of 2. Yeah of course she still acts and looks in many ways like a little 2year old, I don't know how to say it, but she is just a little older. My prayer for her is that her heart, innosense, fun, childlike faith, and spunk are spared as much as possible. Of course we would trade each and all for her health, but tonight it was a little more difficult, face to face with them.

As I rubbed her back and said "You have Leukemia?" I said, Yah that's right but you are going to be alright, because you have Jesus in your heart". "Where?" Kaitlyn said, "In your heart and up in the sky".. I looked her straight in they eye and believed those words more than most that I have spoke thus far.. God has the ability to heal her in an instant and at his discression he will work with her and move in her as he sees fit.. I can't define God's goodness by her progress nor if he heals her.. but through his orchestration of our whole journey thus far I(we) do know this.. He is a GOOD God.. He works all for good and according to his plan, and that evidence helps our faith

As I can't do anything to spare my daughter, I do know she is in the best hands of anyone in the universe..

Locks of Love

I can't believe we are home!! I have waited to write this post at a time when I had a moment and that has been few and far between.... God has been so good to our family! He has brought his body around us to support us and lift us up in a way that I have never seen before! Every day since Kaitlyn has been diagnosed God has shown His amazing love to us through other people! The phone calls, letters, e-mails, packages, gifts, food, house cleaned, laundry done, new beds for the girls, air purifier, nurses who believe in Him, fellow ALL mom's, and prayer prayer prayer ....etc.As a mom more than ever you want to take care of your family and especially your little baby who's sick. Not really fully understanding the depth of what that meant over whelmed me at times. But God is so faithful! When I couldn't see what the future held he would bring so many others to guide us all. Thank you to so many who have made the beginning of Kaitlyn's journey possible!!!When I was at the hospital these last few weeks, nights were the hardest for me. Kaitlyn was finally asleep and I couldn't chance waking her up by calling anyone and it really became a time of relying on God for strength. Allot of the hard questions came to me at night and the only place I had to go was his word for comfort. Many scriptures spoke to me but the one I would like to share today is Psalms 34:1-5,7&8,15,17-19 I know that seems choppy but when ever I'm trying to understand a scripture I write it out and these words latterly brought me to my knees! He's so faithful we may go through hard times but he will never leave us! Part of the scripture says "I sought the Lord and he answered me, he delivered me from all my fears..." We have such a long journey ahead and I know that this is just the beginning. I know I will have really hard days but I know Eric and I will choose to follow him no matter what!! "The eyes of the Lord are on the righteous and he hears their cry...." Yesterday I cut my hair off. Many of you have heard how long I have tried to grow healthy long hair and the one that loves it the most would be my husband. But being at the hospital around so many kids young and old I was so moved by the impact this must play on the teen girls going through the process of loosing their hair. I called my wonderful friend Grace who immediately had me come over and cut my hair right off. I have exactly 10inches which I will be donating to locks of love. If anyone is interested in doing this go to www.locksoflove.com


















Having so many amazing people support us has taught me so much about the body of Christ and what it truly means to help those in need. Thank you to so many for being such a huge example to me, Eric and our girls! These times are changing us and growing us in so many amazing ways! I love you all!! 

I had to snap a few pictures today

I couldn't resist sharing these today

Celebrating no MRD!!!!!! with spagetti

 

NEWS!!!!

100% Rapid responder!!!!!

MRD test came back negative...


THANK GOD !@!@!@!)*)WDFK@N#RT@!#F)SF)ADCKANDSA$RKH@Q#$R#@!%ADF)



^that is me jumping up and down ;-)